{"id":4062,"date":"2023-11-21T17:12:07","date_gmt":"2023-11-21T22:12:07","guid":{"rendered":"https:\/\/awishmontreal.org\/2023\/11\/21\/lhistoire-de-barb\/"},"modified":"2024-07-13T16:09:06","modified_gmt":"2024-07-13T20:09:06","slug":"lhistoire-de-barb","status":"publish","type":"post","link":"https:\/\/awishmontreal.org\/fr\/2023\/11\/21\/lhistoire-de-barb\/","title":{"rendered":"L’histoire de Barb"},"content":{"rendered":"\t\t
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par Barbara Chartrand<\/strong><\/p>\n

Barbara Chartrand est un membre de longue date et une ancienne tr\u00e9sori\u00e8re d’AWISH, ainsi qu’une \u00ab\u00a0b\u00e9n\u00e9vole de l’ann\u00e9e\u00a0\u00bb du West Island Volunteer Bureau. Elle \u00e9tait une animatrice d\u00e9vou\u00e9e du programme AWISH d’autogestion de l’arthrite.<\/em><\/p>\n

\u00ab\u00a0La d\u00e9tresse peut d\u00e9clencher une pouss\u00e9e et je dois me rappeler qu\u2019il est important de briser un cycle n\u00e9gatif de pens\u00e9es et de sentiments.\u00a0\u00bb<\/strong><\/p>\n

\u00c0 la mi-juin 1992, j’ai soudain \u00e9t\u00e9 tellement enfl\u00e9e que j’ai cru mourir. Je vivais avec quelques douleurs depuis quelques ann\u00e9es et j’avais l’impression de m’en sortir correctement. Quoi qu’il en soit, je les ai en quelque sorte ignor\u00e9s. J’ai \u00e9t\u00e9 tr\u00e8s occup\u00e9e par le d\u00e9c\u00e8s de ma belle-m\u00e8re, puis par la prise en charge et le d\u00e9c\u00e8s de mon cher mari.<\/p>\n

Mais ce nouveau d\u00e9veloppement \u00e9tait soudain, s\u00e9rieux et tr\u00e8s effrayant, et mon rhumatologue habituel \u00e9tait absent. Je pense que j’ai eu beaucoup de chance que ce soit la fin de l’ann\u00e9e scolaire et que les listes de patients soient plus l\u00e9g\u00e8res, car j’ai pu obtenir un rendez-vous avec un autre rhumatologue le 23 juin. On m’a diagnostiqu\u00e9 une polyarthrite rhumato\u00efde. Elle m’a imm\u00e9diatement mis sous prednisone, juste pour couvrir les deux jours jusqu’\u00e0 ce que mon rhumatologue revienne. J’ai eu la chance de pouvoir le voir tout de suite. Le 1er juillet, je me suis retrouv\u00e9e au Centre juif de r\u00e9adaptation pour six semaines de traitements, de physioth\u00e9rapie intensive et d’ergoth\u00e9rapie. J’ai pris de la prednisone jusqu’en 1999.<\/p>\n

C’est le Rehab qui m’a fait d\u00e9couvrir les bains de glace. Ils m’ont plac\u00e9, en short et en T-shirt, sur un lit de glace recouvert d’un drap. Ils ont mis de la glace sur mes chevilles, mes genoux, mes hanches, mon cou, mes coudes et mes mains. Je suis rest\u00e9e allong\u00e9e pendant 20 minutes… apr\u00e8s, je me suis sentie tellement bien – soulag\u00e9e!<\/p>\n

Aujourd’hui encore, si j’ai vraiment mal, je me fais couler un bain d’eau froide et j’ajoute des sachets de cong\u00e9lation que j’ai toujours \u00e0 port\u00e9e de main. J’ai une tasse de th\u00e9 chaud pr\u00eate \u00e0 l’emploi et le lit est baiss\u00e9 pour moi. Je trouve que le simple fait de faire couler de l’eau froide sur l’articulation ou d’appliquer une poche de glace (ou un sac de petits pois congel\u00e9s) peut \u00eatre d’une grande aide. Le froid est toujours suivi de la chaleur.<\/p>\n

J’ai quitt\u00e9 le Rehab le vendredi et on m’a donn\u00e9 le num\u00e9ro de t\u00e9l\u00e9phone de Connie Jelley. Elle avait organis\u00e9 un groupe appel\u00e9 AWISH (Association d’entraide d’arthrite de l’Ouest de l’\u00cele). Je l’ai appel\u00e9e dimanche. Le lendemain matin, elle et son mari sont venus avec du caf\u00e9 et des beignets. <\/p>\n

Connie m’a parl\u00e9 de leur r\u00e9union sur l’arthrite la semaine suivante. J’y suis all\u00e9 et, la semaine suivante, j’ai assist\u00e9 \u00e0 une autre r\u00e9union. En septembre, j’ai assist\u00e9 \u00e0 un \u00e9v\u00e9nement qu’ils ont organis\u00e9 au Centre Sarto Desnoyers \u00e0 Dorval. En octobre, j’ai particip\u00e9 \u00e0 toutes les r\u00e9unions r\u00e9guli\u00e8res. \u00c0 l’\u00e9poque, il y avait un bureau, mais nous n’avions pas les moyens de recruter du personnel. J’ai donc pris en charge les t\u00e2ches administratives et les appels deux jours par semaine, en partageant la charge avec d’autres b\u00e9n\u00e9voles.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tLire la suite<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t

Au cours de l’hiver 1993, j’ai particip\u00e9 au Programme d’autogestion de l’arthrite (PAGA) offert au Qu\u00e9bec par Connie. Je souffrais encore – j’essayais de faire n’importe quoi. J’ai suivi le cours de six semaines pendant six mois. Je le laisserais un peu de c\u00f4t\u00e9 et j’y reviendrais de temps en temps. Je me suis vite rendu compte que chaque fois que j’y revenais, je me sentais mieux. C’\u00e9tait l’outil qu’il me fallait! En 2002, j’ai suivi la formation intensive d’animateur et j’ai commenc\u00e9 \u00e0 donner des cours en 2003.<\/p>\n

Je n’avais jamais fait de b\u00e9n\u00e9volat auparavant. Il m’aide physiquement, mentalement et \u00e9motionnellement. Je ne m’attarde plus sur mes propres malheurs. Je suis devenu plus agile, plus positif et plus confiant. La douleur s’att\u00e9nue lorsque je travaille avec d’autres personnes, comme c’est le cas pour d’autres \u00e9v\u00e9nements heureux (comme mon nouvel amour, Rollie). Le bon conseil est donc de rechercher et de se concentrer sur les aspects positifs !<\/p>\n

Il a \u00e9t\u00e9 extr\u00eamement gratifiant d’aider les autres tout en am\u00e9liorant ma propre situation – les responsables suivent leur propre plan d’action personnel avec le reste des participants. Le cours apporte toujours de nouvelles id\u00e9es pour un mode de vie plus sain, du temps pour soi, de l’exercice, la gestion de la douleur et la relaxation.<\/p>\n

Bien s\u00fbr, tout n’est pas rose, tout le temps. Les gens peuvent voir que je souffre, car je suis vraiment malheureuse. <\/p>\n

La d\u00e9tresse peut d\u00e9clencher une pouss\u00e9e et je dois me rappeler qu’il est important de rompre un cycle n\u00e9gatif de pens\u00e9es et de sentiments. J’ai appris \u00e0 dire \u00ab\u00a0non\u00a0\u00bb aux gens et \u00e0 faire savoir \u00e0 ma famille et \u00e0 mes amis ce que je traverse. Dire \u00ab\u00a0non\u00a0\u00bb signifie que je ne peux pas, \u00e0 ce moment-l\u00e0. Les choses changent.<\/p>\n

Lorsque le diagnostic a \u00e9t\u00e9 pos\u00e9, j’ai eu tr\u00e8s peur. Je ne savais pas \u00e0 quoi m’attendre ni ce que je devais croire. J’ai re\u00e7u trop d’histoires de tout le monde. Je n’\u00e9tais pas capable de faire des choses simples comme ouvrir des bocaux (mon r\u00e9frig\u00e9rateur \u00e9tait plein de r\u00e9cipients que ma s\u0153ur avait laiss\u00e9s ouverts pour moi avec une note sur l’ext\u00e9rieur du r\u00e9frig\u00e9rateur pour avertir les autres). J’ai eu l’impression que mon monde s’\u00e9croulait. Je ne voyais que ce que je ne pouvais plus faire et j’imaginais un avenir sombre.<\/p>\n

Je vous conseille, si vous commencez \u00e0 vous sentir comme \u00e7a, de vous adresser \u00e0 un groupe de soutien. Plus t\u00f4t vous apprendrez \u00e0 accepter la situation, plus t\u00f4t vous pourrez l’am\u00e9liorer. Vous avez besoin de parler et d’exprimer ce que vous vivez ; comparez vos notes, vos id\u00e9es, ce qui fonctionne et ce qui ne fonctionne pas. Modifiez vos attentes pr\u00e9con\u00e7ues ; red\u00e9finissez vos limites et vos capacit\u00e9s. Concentrez-vous sur ce que vous pouvez faire et partez de l\u00e0<\/p>\n

Il n’est pas facile de se rendre \u00e0 des r\u00e9unions ou de parler de sa situation, mais cela aide, m\u00eame si l’on se contente d’\u00e9couter les orateurs et les r\u00e9ponses des autres. Vous pouvez commencer \u00e0 parler avec les personnes avec lesquelles vous avez un bon contact. Je sais que si je n’avais pas particip\u00e9 \u00e0 AWISH et \u00e0 l’ASMP, je ne serais pas l\u00e0 o\u00f9 je suis aujourd’hui.<\/p>\n

J’ai appris que plus je reste devant la t\u00e9l\u00e9, plus je me sens mal, alors je reste active. J’aime profiter pleinement de la vie – ma nouvelle famille \u00e9largie, mes amis, les voyages et l’exercice physique. Je joue au bowling et au golf – et j’ai des photos qui prouvent que l’on PEUT jouer au golf avec des attelles. Je vous souhaite de d\u00e9couvrir tout ce que vous pouvez accomplir.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Barb d\u00e9crit son parcours \u00e0 travers une aggravation soudaine de la gravit\u00e9 de la polyarthrite rhumato\u00efde et des solutions \u00e9volutives pour rester motiv\u00e9e, bouger et apprendre. Ses d\u00e9couvertes incluent la valeur cognitive et de gu\u00e9rison sociale des groupes de soutien et du b\u00e9n\u00e9volat. <\/p>\n","protected":false},"author":1,"featured_media":4225,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[29],"tags":[],"class_list":["post-4062","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-partagees"],"yoast_head":"\nL'histoire de Barb - AWISH<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/awishmontreal.org\/fr\/2023\/11\/21\/lhistoire-de-barb\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L'histoire de Barb - AWISH\" \/>\n<meta property=\"og:description\" content=\"Barb d\u00e9crit son parcours \u00e0 travers une aggravation soudaine de la gravit\u00e9 de la polyarthrite rhumato\u00efde et des solutions \u00e9volutives pour rester motiv\u00e9e, bouger et apprendre. 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