{"id":4057,"date":"2023-11-21T20:53:51","date_gmt":"2023-11-22T01:53:51","guid":{"rendered":"https:\/\/awishmontreal.org\/2023\/11\/21\/diagnostic-et-maintenant\/"},"modified":"2024-07-13T20:00:58","modified_gmt":"2024-07-14T00:00:58","slug":"diagnostic-et-maintenant","status":"publish","type":"post","link":"https:\/\/awishmontreal.org\/fr\/2023\/11\/21\/diagnostic-et-maintenant\/","title":{"rendered":"Louise: diagnostic, et maintenant?"},"content":{"rendered":"\t\t
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par Louise Bergeron <\/strong><\/p>\n

\u00ab\u00a0J’ai cherch\u00e9 de l’aide dans le syst\u00e8me de sant\u00e9, notamment aupr\u00e8s de mon CLSC local, mais personne ne savait comment m’aider ou vers qui me diriger.\u00a0\u00bb<\/strong><\/p>\n

Il nous arrive \u00e0 tous de souffrir dans notre vie. Nous avons tous de la peine. Mais si nous sommes sages, nous savons qu’il y a toujours un lendemain.<\/p>\n

\u00ab\u00a0Prends appui sur moi, quand tu n’es pas fort, et je serai ton ami, je t’aiderai \u00e0 aller de l’avant. Car, dans peu de temps, j\u2019aurai besoin de quelqu\u2019un sur qui m\u2019appuyer…\u00a0\u00bb<\/em><\/p>\n

La plupart des gens reconna\u00eetront cette chanson comme \u00e9tant une chanson populaire des ann\u00e9es soixante. Lorsque j’entends cette chanson, elle me rappelle \u00e0 quel point le soutien \u00e9motionnel est important dans une maladie comme l’arthrite.<\/p>\n

Lorsqu’on m’a diagnostiqu\u00e9 une arthrite inflammatoire, puis un lupus syst\u00e9mique, j’ai cherch\u00e9 fr\u00e9n\u00e9tiquement de l’aide partout. Essayer d’obtenir de l’aide alors que je me sentais si malade a probablement \u00e9t\u00e9 la chose la plus difficile que j’aie jamais eue \u00e0 faire. Je souffrais \u00e9norm\u00e9ment et j’\u00e9tais constamment \u00e9puis\u00e9e. Je suis tellement \u00e9puis\u00e9e que la seule id\u00e9e de t\u00e9l\u00e9phoner me d\u00e9courage. J’ai cherch\u00e9 de l’aide dans le syst\u00e8me de sant\u00e9, notamment aupr\u00e8s de mon CLSC local, mais personne ne savait comment m’aider ou vers qui me diriger. J’avais l’impression de frapper \u00e0 des portes ferm\u00e9es. Je me suis mise en col\u00e8re parce que je n’arrivais pas \u00e0 obtenir ce dont j’avais besoin pour comprendre les troubles physiques et \u00e9motionnels dans lesquels je me trouvais.<\/p>\n

Gr\u00e2ce \u00e0 la Soci\u00e9t\u00e9 d’Arthrite du Canada, j’ai finalement trouv\u00e9 le nom de AWISH. J’ai \u00e9t\u00e9 soulag\u00e9e lorsque j’ai rejoint le groupe d’entraide et de partage d’AWISH. J’ai trouv\u00e9 ce que je cherchais depuis des mois. Ils ont compris ce que je vivais gr\u00e2ce \u00e0 leurs propres exp\u00e9riences. Gr\u00e2ce \u00e0 leurs encouragements, ils m’ont aid\u00e9 \u00e0 comprendre comment vivre avec cette maladie qu’est l’arthrite. C’est environ un an apr\u00e8s \u00eatre tomb\u00e9e gravement malade que j’ai finalement re\u00e7u le diagnostic de lupus \u00e9ryth\u00e9mateux diss\u00e9min\u00e9 (LED) et que j’ai rencontr\u00e9 d’autres personnes atteintes de la m\u00eame maladie. En \u00e9changeant des informations et en discutant de la mani\u00e8re de faire face \u00e0 la maladie, j’ai \u00e9t\u00e9 rassur\u00e9e sur la mani\u00e8re de g\u00e9rer le lupus. D’autres ont confirm\u00e9 par leur exp\u00e9rience que l’approche que j’adoptais, c’est-\u00e0-dire les bons m\u00e9dicaments, beaucoup de repos, la r\u00e9duction du stress et un suivi appropri\u00e9, \u00e9tait la bonne. Je me suis sentie plus en contr\u00f4le, ce qui m’a rendue moins d\u00e9prim\u00e9e, moins en col\u00e8re et moins am\u00e8re.<\/p>\n

J’ai appris \u00e0 m’entourer de personnes solidaires et bienveillantes pour retrouver la meilleure qualit\u00e9 de vie possible et je le recommande \u00e0 tout le monde. Il s’agit de votre m\u00e9decin, de votre famille et de vos amis. Si votre m\u00e9decin ne vous soutient pas, trouvez quelqu’un qui le fera.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tLire la suite<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t

\u00c9duquez votre conjoint en m\u00eame temps que vous vous \u00e9duquez vous-m\u00eame. N’oubliez pas qu’ils s’adaptent \u00e9galement au choc, \u00e0 la col\u00e8re, au d\u00e9ni et \u00e0 la d\u00e9pression que vous vivez et qu’ils peuvent avoir besoin de soutien. Certaines amiti\u00e9s peuvent n\u00e9cessiter une r\u00e9\u00e9valuation. Les niveaux d’\u00e9nergie n’\u00e9tant plus ce qu’ils \u00e9taient, vous devez vous d\u00e9barrasser des relations n\u00e9gatives. S’entourer de relations positives finit par \u00eatre utile.<\/p>\n

Vous pouvez \u00e9galement trouver un soutien \u00e9motionnel en lisant des livres sur la fa\u00e7on de faire face \u00e0 votre maladie.<\/p>\n

Apprendre \u00e0 faire face, c’est notamment apprendre \u00e0 accepter de l’aide. L’internet est \u00e9galement un outil inestimable o\u00f9 les salons de discussion peuvent aider les gens \u00e0 entrer en contact, en particulier pour les personnes dont la mobilit\u00e9 est r\u00e9duite. (Attention, bien s\u00fbr, aux t\u00e9moignages non fond\u00e9s qui semblent trop beaux – ils sont trop beaux pour \u00eatre vrais).<\/p>\n

La spiritualit\u00e9 offre \u00e9galement un soutien \u00e9motionnel en apportant du r\u00e9confort et un sens \u00e0 la vie.<\/p>\n

Les travailleurs sociaux ou les psychologues, qui ont l’exp\u00e9rience des maladies chroniques, sont tr\u00e8s utiles.<\/p>\n

Ce qui est important, c’est de chercher cette aide, car vous \u00eates la seule personne qui puisse vraiment vous aider.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Louise a eu du mal \u00e0 g\u00e9rer deux affections arthritiques graves r\u00e9cemment diagnostiqu\u00e9es, tout en se sentant \u00e9motive et sans direction. Elle souligne l\u2019importance de construire des partenariats positifs, d\u2019obtenir et de partager des id\u00e9es et de diriger votre propre cas. <\/p>\n","protected":false},"author":1,"featured_media":4223,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[29],"tags":[],"class_list":["post-4057","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-partagees"],"yoast_head":"\nLouise: diagnostic, et maintenant? - AWISH<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/awishmontreal.org\/fr\/2023\/11\/21\/diagnostic-et-maintenant\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Louise: diagnostic, et maintenant? - AWISH\" \/>\n<meta property=\"og:description\" content=\"Louise a eu du mal \u00e0 g\u00e9rer deux affections arthritiques graves r\u00e9cemment diagnostiqu\u00e9es, tout en se sentant \u00e9motive et sans direction. 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